Running for Research – Prader-Willi syndrome
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Prader-Willi Syndrome (PWS) is a rare genetic disorder that occurs in approximately one out of every 15,000 births. It is a complex condition that affects many areas of development, including growth, metabolism, cognition and behavior. Its hallmark feature is hyperphagia, which is a constant, insatiable hunger. It is a devastating diagnosis that places a heavy burden on all who are afflicted as well as their families and caregivers.
In spite of this, there is hope! The hope comes in the form of novel research that developing new treatment options and a better understanding of the mechanics of this syndrome.
Please help to keep this research ongoing. Your donation will provide continued hope toward a better future for those suffering from this disorder.