Ambassador Highlight: Meet Kinsey

Published: October 12th, 2017

Category: CMN Ambassador Stories, For the Kids, Patient Stories

CMN Ambassador Kinsey Bogart

For the first seven months of her life, Kinsey was a perfectly normal baby. When her arms and legs suddenly began to swell, her parents learned that Kinsey was in kidney failure.

Kinsey’s mom, Holly, said the family was devastated when they learned of their daughter’s diagnosis of atypical hemolytic uremic syndrome, or aHUS, and cardiomyopathy. Doctors originally gave Kinsey a life expectancy of less than a year and began experimental treatments.

Part of Kinsey’s treatment plan, which required her to stay in the hospital for more than three months, included a kidney transplant, which was made more difficult because her veins and arteries had blockages throughout. Thanks to doctors at UF Health Shands Children’s Hospital, the transplant surgery was successful.

Kinsey’s long recovery had some unique highlights – such as the decorations and presents that were placed in her hospital room by Child Life specialists on the one-year anniversary of her transplant.

At the time of her diagnosis the disease was fairly new. Holly said the disease is still very rare and they have a lot to learn, but a new medication has been introduced to help with aHUS. Kinsey currently receives this medication via infusion every three months.

Today, Kinsey is 14 years old and her parents consider her a miracle. Doctors agree that she has prevailed despite the tough statistics associated with her disease. Kinsey enjoys studying math, but mom says she does better in science. She also loves Disney, swimming, singing and dancing, her iPad and adult coloring books.

“We credit God for saving Kinsey’s life by using the doctors at UF Health Shands Children’s Hospital,” said Holly. “We know how he used all of the doctors and staff to keepher alive, and keep us close to home.”

Interested in becoming part of our CMN Ambassador family? Complete the form below and we will provide more information.

CMN Ambassador Family

  • Optional Information

For The Kids Newsletter

We invite you to subscribe to our monthly newsletter that features our ambassador children, news related to the children's hospital and upcoming events.

The latest from For the Kids

CMN Ambassador Dani-Lynn Early

Ambassador Highlight: Meet Dani-Lynn

Jun 29th, 2018

Like many families whose children are born with serious illness, the Early family vividly remembers the day their lives changed forever.

UF Health Shands Children's Hospital facade

UF Health Shands Children’s Hospital ranked in 6 medical specialties

Jun 27th, 2018

The University of Florida Health Shands Children’s Hospital once again ranked among the nation’s best pediatric hospitals in six medical specialties for 2018-19

UF Health Shands Children's Hospital | Children's Miracle Network Hospitals logo

Dance Marathon programs launch 2018-19 campaigns

Jun 27th, 2018

Earlier this month, Dance Marathon programs at UF, FSU and FAU officially launched their online fundraising pages for this year’s campaign.